Adult Strabismic Patients' Forum

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Adult Strabismic Patients' Forum

Join a discussion place for adult strabismic patients and developmental optometrists to share insights and stories; questions and encouragement.

Stereopsis is our goal. "Fixing My Gaze" by Susan Barry is our inspiration.

Members: 103
Latest Activity: Jun 25

Discussion Forum

Problem with depth perception

Hello everybody, So i'll try to describe my situation, I used the TNO test and couldn't see any thing :/ However, when i try the test on this page (…Continue

Started by Waggle James Jun 16, 2016.

First Time Surgery! 33 Replies

Hi Everyone! I'm new to this forum! :) I'm in the process of being evaluated for Strabismus surgery and my surgery is tentatively scheduled for March 21st. I'm 23, almost 24, and I've had this all my…Continue

Started by Samantha. Last reply by Samantha Mar 29, 2016.

Has anyone overcome (Abnormal retinal correspondence) ARC and/or horror fusionus? 21 Replies

As the un-proud owner of both of these descriptions for my visual system, I'd like to know if anyone has achieved binocular vision despite having either or both …Continue

Started by Susanna Z. Last reply by Roger Wharton Aug 30, 2015.

Vertical misalignment - Can't fuse! 3 Replies

Hi Everyone,My name is Adam and I'm a 27 year old with alternating esotropia. I had 2 surgeries when I was 2 or 3 years old (I don't even know exactly when). But of course my eyes only looked…Continue

Started by Adam Bonarrigo. Last reply by Adam Bonarrigo Jul 30, 2015.

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Comment by Susanna Z on June 25, 2017 at 1:09pm

I have made a series of videos in English, SpanishRussianFrenchPortuguese, and Italian about binocular vision problems (amblyopia, strabismus, convergence insufficiency and others). Topics covered: how not seeing in 3D impacts the daily lives of people who lack stereovision, vision therapy, misdiagnosis of ADD & ADHD, strabismus surgery, prisms, medical malpractice against doctors who don’t inform their patients about their binocular vision problems and more.

English 

 

Portuguese (em português)

French (français) 

 

Spanish (español) 

Russian (русский)

 

Comment by Susanna Z on December 21, 2016 at 4:46am

I was on KQED radio, the San Francisco NPR affiliate, on Tuesday with an audio essay about my asymmetric eyes, binocular vision therapy, learning to see in more depth and being neglected by the medical establishment. 

Here is the link to the audio and text: 

https://ww2.kqed.org/perspectives/2016/12/19/seeing-2d-in-the-3d-wo...

Comment by Kathe Rowe on September 29, 2016 at 4:04pm

Hi Susanna,

What a great TV interview! It is so important for parents to have more knowledge and understanding regarding the treatment that a child with strabismus/amblyopia needs. I know my parents just did what doctors recommended, which was surgery. I will have to check out your book. :)

Comment by Susanna Z on September 2, 2016 at 2:12pm

Hello after a long silence! 

I have been busy for the last two years to put my experiences about seeing in 2D, my surgeries, frustration communicating about this hidden disability and VT into a book, One-Eyed Princess.

Here is the CBS TV interview I did in San Francisco about
 what it's like to see in 2D in a 3D world with special emphasis on what parents should know about how binocular vision problems impact children in school and sports: https://www.youtube.com/watch?v=I0GNiJpsfy8

My depth perception and visual acuity have improved due to VT, as has my general perception of the world around me. I chose to publish this book even though I don't see in 3D yet, because I want to prevent others from suffering the humiliation, lack of understanding, poor medical care and plain old ignorance that has caused so many of us many heartaches. 

Comment by Frances McIntosh on March 1, 2015 at 2:40am

I think surgery should be a last resort--if that. As far as I know surgery can impede VT but VT won't interfere with surgery. Also, it's not uncommon for the eyes to drift away from alignment after surgery. When that happens it becomes more difficult to correct the misalignment--by surgery or VT. Furthermore, surgery generally only aligns the eyes. VT can do that, plus a lot more--including, in a lot of cases the acquisition of stereopsis.  --Frances

Comment by Pawan Joshi on March 1, 2015 at 1:28am
Dear All, I feel strabusmus surgery is just hit and trial procedure without any sure shot results. For forty years I lived with my squint and then underwent correction surgery by one of the best doctors. Thereafter my life has become miserable and much less comfortable than the past. Think twice before the surgery.
Comment by Lynda Rimke on February 28, 2012 at 1:33pm

Good question: when did surgery gain more acceptance? From what I've read, it seems this developed in the 1950s in most parts of the country. Brock's wrtitings are from the 1940s.

Then Hubert and Weisel published their cat experiment in the 1960s limiting plasticity to the first few months, further sealing the nail in the VT coffin.

Note how many 50-somethings are on this forum, now seeking the VT they were told didn't work over the last 40 years. I for one, was discouraged VT by a developmental optometrist in 1980 because he could only guarantee I would see double. Even when I sought VT in 2011 I was given no promises it would work by the practicing FCOVD in the area.

Sue Barry's published works in this century have only begun to offset the untruths that have been accepted all of our lives, by opthalmologists, by pediatricians ... by the majority of optometrists who only prescribe for acuity, even by developmental optometrists who primarily work with convergence insuffiiciency in children.

Comment by Greg Voth on February 27, 2012 at 11:04pm

I'm no doctor... all opinion here: I reacted to your wax/wan terminology as thought you were referring to some current trend. You are just trying to reference when surgery came to prominence as a treatment option? As surgical techniques were better perfected, I would assume.

Being that surgery is a rather 'quick fix' when compared to many dozens of VT sessions, perhaps many parents trusted then and still choose to put themselves in a surgeons hands - human nature dictates we'll almost always choose the 'easy way.' I would doubt that much surgery is offered to gain 3-D, but more to straighten the eyes.

I'm thankful that my dad was too cheap to go for the surgery option - I'm sure it was offered but would have surely been more risky back in 1958.

Comment by Robert (Bob) Hohendorf OD on February 27, 2012 at 10:46pm

    I think medicine has always been favored surgery and convinced the public of their opinion. VT was started by an English surgeon who's son had a strabismus (characterized by a turned eye). It is just recently being publicly discovered that surgery is a cosmetic procedure and in less than 10% of the cases does it allow for two eye coordination. In 90% of the cases the eyes look straight for awhile.

Comment by Robert (Bob) Hohendorf OD on February 27, 2012 at 10:24pm

    I thought Sue Barry blends the technical and the personal experiences she went through very nicely. The specifics you personally need may indeed be very prsonal and specific to you.

    What do you mean by the waxing and waning of surgery and VT?

Bob H

 

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